What's in a Name?

I think people who have lupus, or SLE, should have a name for themselves.

One reason I think we need a name to describe us is because I come somewhat annoyed at such names as "Lupus Victim" or "Lupus Survivor." I am not, nor have I ever been, a victim of anything, particularly of lupus. And yes, I am a survivor, but that connotation smacks of a lucky circumstance, such as " I survived a hurricane" or some other natural disaster.

I'm not mocking others that are proud to call themselves A _______ Survivor (fill in the blank with the name of a disease. They can call themselves anything they want. I just choose not to use those terms.



Now, I've seen the term, Lupie. Not so fond of that, either, because while it reflects a light-hearted touch, it also brings up the derogatory impression of someone who is a bit -- well, strange, or inebrieated, or "loopy."



So I herewith present some options I just made up. Read at your own peril.



Lupian

Lupusonian

Lupusette (for a woman)

Lupusor (male)

Lupuster

SLEer

SLEver

SLEian

SLEonian



Well, you get the idea. It's late, and my nighttime meds have just kicked in and this Lupus person needs to get to bed.

If you have any suggestions for a name for those of us who have lupus, feel free to leave them in a comment. I promise I will take any and all names under consideration. Since I am broke, as nearly all of us with lupus are, there will be no prizes awarded. However, if I find one that particularly tickles my funny bone, I promise I will use that name in my next post here.

Have fun.

<Lupus