Monday, May 4, 2009

Pain is Pain.........

I had taken this blog down a few days ago, and then realized, as I was trolling through the Internet, that some comments and references to this blog were still out there. What was I thinking? I was missing some opportunities to blog directly about lupus and share my blog posts with others.

So I took a deep breath and created this blog again, hoping I could have the same title....And yes, I can!

So what can I say today about lupus? I'm feeling more effects today from fibromyalgia than from lupus. My muscles hurt, all over. Kind of like when my joints hurt, all over, when lupus was rampant in my body. I don't know which hurts more.....but it doesnt' matter, anyway. Pain is pain. And I know it will get better. Maybe not today, but it will get better. That's what I kept telling myself -- and others -- who were experiencing pain from SLE. Take your meds, and take them regularly. Don't miss any doses of Plaquenil, or prednisone, or Imuran or Cytoxan -- whatever your rheumatologist has prescribed. A Tylenol every now and then, if it's suggested by your doctor, could also help.

In the meantime, it's a Mean Time.


  1. No, definitely don't shut down. You never know who you might be helping, and/or who will stumble on a life-changing post several months after you wrote it! I have Lupus, and also Fibromyalgia, so I'm told. I was diagnosed with both at the same time, so I haven't given the Fibro much attention. I have a great doctor in Sacramento treating my Lupus. His specialty is Fibromyalgia, but he also treats autoimmune since, hey, we're all one big, happy family. Here's his website if you want to take a look:

  2. I recently came accross your blog and have been reading along. I thought I would leave my first comment. I dont know what to say except that I have enjoyed reading. Nice blog. I will keep visiting this blog very often.


  3. Thanks to you both, Karmjina and amishdancer. Please see today's blog (Aug. 24th) for details about a new book I'm writing about lupus. You might want to take part in this project. More details will follow, but for now, most of the information is posted.
    Many thanks.